In the years,
I’ve spent living with MCI I have struggled to find support and groups which
match my needs. This may be because
there is an overlap between Alzheimer’s, Dementia & MCI.
All 3 can
have varying interpretations, even by healthcare professionals, yet their
meanings are distinctly different.
I’m in my
30’s and support seems to be tailored towards the Older generation and groups
steered the same way.
It is my
aim to try and promote the need for better support within the MCI community for
those of all ages but to also clarify the difference to prevent further
confusion.
Mild Cognitive Impairment (MCI)
In my
case, MCI is slightly more than having a “Brain Fart”, for everyone it is a
cognitive change within the brain. These changes are more frequent than what is
“normal” for an individual at a particular age and is usually thought of as the
stage between normal forgetfulness due to age and the development of dementia.
For the
most part MCI memory problems may be minimal to mild and are hardly noticeable
to the person – I’ve found from personal experience that writing reminders can
help for these mild changes.
Symptoms
of MCI can include:
·
Difficulty performing more than
one task at a time
·
Difficulty solving complex
problems or making decisions
·
Forgetting recent events or
conversations
·
Taking longer to perform more
difficult mental activities
Importantly,
a diagnosis of MCI doesn’t mean doom and gloom, you’re still able to perform
your usual daily activities with minimal change and difficulty. When this is no longer the case, then
dementia becomes a more appropriate term to describe the condition.
Dementia
Dementia,
unlike Alzheimer’s isn’t a specific disease.
It is a group of symptoms affecting intellectual and social abilities
sever enough to interfere with daily functioning.
Memory
loss, which generally occurs in dementia, alone doesn’t mean dementia. The term dementia implies there are problems
with other brain functions as well, and that more than one dementia symptom is
present.
These
symptoms include:
·
Memory loss
·
Language problems
·
Inability to learn or remember new information
·
Difficulty with planning and organizing
·
Difficulty with coordination and motor functions
·
Personality changes
·
Inability to reason
·
Changes in behavior
·
Apathy or loss of interest in activities
·
Paranoia
And symptoms can be due to many things such as
·
An underactive thyroid
·
Vitamin deficiency
·
Brain tumours
·
Depression
Through my own research I have also found that even certain medications
can cause dementia symptoms.
However, if during a medical evaluation these reversible causes of
dementia are rules out then the probable cause of dementia may be due to
Alzheimer’s.
Alzheimer’s
Alzheimer's causes brain changes that gradually get
worse. Two abnormal structures called plaques and tangles are prime suspects in
damaging and killing nerve cells, causing a steady decline in memory and mental
function.
In many older people, Alzheimer’s is the most
common cause of progressive dementia symptoms.
Symptoms are similar to those described above under
dementia, which is why the terms are often used interchangeably.
However, dementia is simply a set of symptoms,
whereas Alzheimer’s describes what is causing the symptoms.
Another reason it gets confusing is because the
lines between normal age-related memory loss and mild cognitive impairment are
blurred and overlap, as are the lines between MCI and early stage dementia
caused by Alzheimer's.
Unlike Alzheimer’s
Unlike Alzheimer’s – where the cognitive decline is
gradual – people with MCI may remain “stable” for years.
And while not everyone with MCI go on to develop
Alzheimers, almost all cases of Alzheimer’s start with MCI.
It's important to note that persons with MCI do
have an increased risk of going on to develop Alzheimer's disease (or another
form of progressive dementia).
Science
Science, however, isn’t able to predict whether
someone with MCI will progress, remain stable or improve.
Current research methods and models are focused on
predicting who will get Alzheimer’s and who won’t.
I don’t have inspiring words of wisdom, or the
functionality to think of way to make any of this better, what I can say is:
If you’ve been diagnosed with MCI hope for the best
but plan for the worst.
**if anyone would like to help
set up a support group for the under 65’s I would be happy to support it to the
best of my ability**
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